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■黃君恆(左)雖患有肌肉萎縮症，但從沒有自怨自艾，反而安慰親人不用為己擔憂。右為其輔導主任陳基海。資料圖片
羸弱的軀殼，寄住了活潑跳脫的靈魂。患有先天性背脊髓肌肉萎縮症的中五生黃君恆，小時候游泳、打球、拉小提琴，樣樣皆能；至中學，本該青春躍動的年紀，手腳活動能力卻嚴重倒退，但頑疾沒有把他打垮，小伙子不但成績名列前茅，又積極參與學校活動，當典禮主持、做輔導領袖生，更激勵為他病情而擔心不已的母親。其自強自愛贏得別人尊重，最近更獲得「蜆殼/港島青商弱能學童獎學金」最佳融合教育學生獎，表現再次獲得肯定。
取得最佳融合教育學生獎的黃君恆，自小好動，誰也看不出他患有先天性背脊髓肌肉萎縮症，其讀書成績好，成功入讀英中民生書院。
中一開始，其肌肉退化萎縮的情況越趨嚴重，需要輪椅代步。負責貼身照顧君恆的母親黃太說，小時候每天為兒子在家中做物理治療，希望他的身體變得強壯，但事與願違，不時感到氣餒；但年紀輕輕、篤信基督教的君恆反而安慰她，「『將來我上到天堂，所有人都一樣』，他叫我不用擔心。」說罷黃太已哽咽難言。
個性堅強的君恆更有一個夢想，就是要成為小提琴家。現正努力備戰，應付會考之餘，亦同時報考小提琴演奏級考試。雖然拉琴費掉他大量力氣，但他仍然堅持每天練習。中一已認識君恆的民生書院輔導主任陳基海透露，君恆中三至中五均讀精英班，成績總在前10多名，相信他能在來年的會考中取得佳績。
Award Goes to Iron-willed Atrophy Form Five Student
A cheerful free spirit resides in a weak body. Wong Kwan-hang is a Form Five student who suffers from congenital spinal muscular atrophy. He was good at many different activities, such as swimming, ball games and violin, while he was a small boy. Moving on to secondary education at the age of a teenager who should be young and energetic, he found his physical ability seriously impaired. Nevertheless, the chronic disease has failed to bring him down. This young man not only gets high ranking in academic achievement, but is also zealously involved in extra-curricular activities, taking up such duties as master of ceremonies and counseling prefect. He also keeps on encouraging his mother who has always worried about his condition. His self-motivation and self-esteem earn him the respect of others. Recently, in recognition of his performance, he has been given the Best Integrated Student Award in the Shell/Island Jaycees Scholarship For the Disabled.
Wong Kwan-hang, winner of the Best Integrated Student Award, was very active since he was young and it never occurred to anyone that he would be a patient of congenital spinal muscular atrophy. He got good results in studying and successfully entered Munsang College, a secondary school that uses English as medium of instruction.
Since Form One, his muscular atrophy has been worsening day by day and he eventually needs to sit on a wheelchair to move around. His mother, Mrs. Wong who takes care of his everyday life said that she gave physical therapy to Kwan-hang at home every day while he was younger, hoping that he would grow stronger physically; yet, she would often get frustrated when she found her hope not able to realize. Wong Kwan-hang, who is a faithful Christian, comforts her in return. Mrs. Wong said Kwan-hang told her not to worry as everybody would be the same when they were in heaven. Mentioning this, she could not help her tears and was speechless.
Iron-willed Kwan-hang dreams of being a violinist one day. He is now working hard for his dream. Apart from preparing for the HKCEE, he has also enrolled for the violin performance assessment. Although playing violin fatigues him, he insists on practising every day. According to Chan Kee-hoi, head of counseling of Munsang College, who knew Kwan-hang since he was in Form One, Kwan-hang has been in the elite class from Form Three to Form Five, and remained one of the top 20 students in academic achievement. He believes Kwan-hang will be able to get good grades in the HKCEE next year. ■translation by開明
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